When Grayson was diagnosed with Alexander Disease in 2017, it was devastating. But it wasn't the first time - or last time - he would overcome odds and inspire those around him with his infectious joy and love.
Grayson’s story began well before he was born. At 20 weeks old in the womb, complications threatened his life; his parents, Josh and Laura, prayed and hoped for a chance to get to know him. He was born the following summer to beaming parents.
As a toddler, Grayson showed clear signs of developmental delays. Undiagnosed but struggling to keep up with his peers, his family hoped he’d show progress. Grayson continued to enjoy M&Ms and Elmo as much as the next kid, and developed in unexpected strides, growing stronger daily.
Now, as a five-year-old living with a seemingly insurmountable disease, we have hope. Hope for a treatment and eventual cure. Grayson’s Ladder strives toward that end through prayer, community, funding and support for families affected by this disease and other forms of Leukodystrophy. This hope stems from our faith, but also from knowing there are medical professionals who wake up thinking about AxD, and who are currently developing a drug with the potential to treat it. With research and funding, this drug could be the difference for people like Grayson, and we are determined to be a catalyst for that cause.
Thankfully, Grayson doesn’t know what Alexander Disease is, but we do. We know it’s urgent. We know lives hang in the balance. But we are hopeful, and we ask you to join us as we take big steps and climb to a cure.